Regan and I Are a Family!!

Shepherd, Regan, and I Are a Family!!!

Saturday, April 02, 2011

Could Ya Grow Already?!?!

This is a picture of 12 months shorts that we are going to donate to Goodwill because they are too short. Yay!! The shirt is also going because it is too small.
Look how scrawny he really is:(
The above picture was taken about 1 month after he came home....look how sallow he looks, so pale. He is definetly is healthier now.
This are 24 month shorts, but we are celebrating because they no longer fall down!!!

Above and below are pictures of how small his clothes are, but he has finally outgrown some clothes and we hope for continued growth.

I have no problem growing...outwards (darn those salsa and lime chips!). Unfortunately, Shepherd is not growing. Since he has come home almost 20 months ago, he has only grown about 1 inch and about 4 pounds. I kept thinking he would catch up, but this hasn't happened. We have been seeing an endocrinologist for another health issue with Shepherd and he became concerned with Shepherd's lack of growth. I am so glad he was concerned because I had been expressing concern for several months prior to our initial visit with them but no doctor shared my concern. When he told me that Shepherd would be only 4'6" at adulthood if he continued with his lack of growth, I was a little bummed. I have not shared Shepherd's entire health history because  it is personal, but believe me when I say that he has several major strikes against him and I didn't want one more for him to overcome. After an MRI of the brain and pituitary, bone age x-ray of his hand, ultrasound of his thyroid and a 7 hour blood test (where he had an IV in his arm and had to sit completely still for 7 hours! Thank goodness he fell asleep after hour 4), it was revealed that Shepherd has a deficiency in his IGF-1 hormone. His human growth hormone is "talking" to his body fine, but with his low IGF-1 his body is not knowing to grow. Of course, the test for IGF-1 deficiency is only about 5 years old as is the growth hormone replacement. It is also a freakin' fortune at ~$45,000-$60,000 freakin' dollars a year!!!! Nuts, I say, Nuts. Thank goodness I just changed insurances and my co-pay is $10 a month. After several months and a gajillion phone calls talking to the insurance company, doctor's office and nurse educator we finally got approved for a 6 month trial of hormone replacement therapy!!! Yay, yay, yay!!!

Two weeks ago, Shepherd started on the hormone. It is injected twice a day and he is doing well with the injections. I give it to him at breakfast and at dinner. It can cause low blood sugar, but so far we have seen no side effects. I really, really hope this helps him to grow. In celebration, we went through his clothes drawer to see what sizes of clothes we have. We have plenty of 3T and 4T clothes because when he first came home he was four and I assumed he would be a little small for his age so I stocked up on 3T clothes. Unfortunately, he has yet to grow into those 3T clothes. He is wearing 12 -18 month shorts and 2T-3T shirts. He is 5 years 7 months old !!!!:( Luckily, he has a lift in his shoes so he doesn't seem quite so short, but he is so scrawny!!  The lift is to adjust for his leg length descrepancy, not for cosmetic purposes.)  I also want to help him to grow prior to kindergarten because I want him treated age appropriately and not like the 3 year old every thinks he is.......Cross your fingers and wish us luck!!

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