Monday, September 24, 2007
A Picture Says a Thousand Words
Sunday, September 23, 2007
Health Scare - Warning: Long, Rambling Post
This week with Regan started off pretty rough. She had been waking in the night again. Not nightmares, just waking up off and on through the night. It culminated on Wednesday night with her waking and just crying and crying and crying. Not scared crying, just crying. I had no idea what was wrong. I tried everything. We finally ended up getting out of bed and meandering the house and then got back in bed and watched The Amazing Race for one and 1/2 hours. This is when I feel exhausted being single. What I wouldn't have given on one of those nights to be able to just let her visit someone else one of those afternoons so that I could nap. Anyway, I took her to daycare on Thursday and was sure I would get a phone call that morning to come pick her up because she was so tired, I thought she would give them a rough time. By noon, I thought I was home free because I hadn't gotten a call and they go down for a nap at 12:00. I had to go to work that morning because I had a scheduled meeting with the wheelchair vendor to make modifications to several children's chairs. At 12:37 I got two phone calls right in a row. One from the downtown ESE office, the other from the daycare. I knew it couldn't be good. The daycare was calling all my contact numbers to get a hold of me to tell me that Regan had severe rashes on her feet and hands and was screaming and scratching herself like crazy. The ESE secretary called my mom and told her the daycare had called and couldn't get ahold of me. My mom works in the downtown school building and so the when Karen, the ESE secretary, heard that the daycare had a "serious" concern, she called my mom. I travel to 14 different schools and so they don't always know what school I am at. Calling my cell phone is the most direct way of getting ahold of me, but they tried that number second. I immediately went to the daycare. I couldn't get ahold of my mom, her secretary told me she was out looking for me and Regan. We ended up pulling into the daycare at the same time. We went in and Ms. Barb, the daycare director met us and was very worried. She said Regan had been itching and screaming and she had a severe rash on her hands and feet and they were starting to swell. She had read what I wrote in her medical information and I had said to call immediately if she developed a rash and she knew some of her medical history and she was concerned. I got Regan and we called the doctor who said to come in right away.
We arrived at the doctor and one of the things they did was a strep test. I won't bore you with all the details, but basically they were not sure if it was a definite positive. Dr. Jones threw out several possibilities, Kawasaki syndrome being the one he thought it looked like the most. She didn't have a fever though and so he was ruling that out for now. He said that Dr. MacKoul said many asians get a rash on the hands and feet with strep so we were treating it like strep for now. He pointed out one patch of redness, not rash, on the calf of her leg. He said it looked like the beginning of a skin infection and if it changed at all to call the office or get to the ER immediately. He said it was probably just a no name skin infection, but to get it looked at if it got worse because of the word I am getting so sick of hearing: MRSA. His indecision about her diagnosis did not make me feel comfortable. After the visit there were still unanswered questions that made me worry. His worry about the redness increased my worry.
That night, we were up for hours with her screaming and itching her feet. The next morning I thought things looked better. I had a flat tire, had to walk Konnor to school (he was late, of course) and get my brother to drive me to my mom's work so that I could borrow her van. This took a couple of hours and by the time we got to my mom's Regan had the same redness on her calf showing up on her underarm. Her axillary lymph nodes were also very swollen. Her calf looked worse. I called the doctor they said to come in immediately. By this time, I am panicked and managed to be a crybaby when I called my work to tell them I wouldn't be in.
We got in right away and saw Dr. MacKoul. I LOVE her. Can I say it one more time: I love her! She is awesome. She peeks in the door and shakes her finger at Regan and says, "You're going to be the death of me little girl!". I said, "You!" and she laughed and said she has nothing on me! I will say, I have so much more appreciation for parents who have chronically ill children. It will break you if you let it. I don't know how they are so strong. The mental strain is unreal. I can deal with chronic health issues. I just am terrified of it being life threatening again.
Dr. MacKoul examined Regan and said that the redness is not connected to any skin opening. She had several massive mosquito bites on her legs that were healing and I was so scared that had provided a skin opening, but the redness was not around them. She said the redness on the arm also did not have an opening it was surrounding. It looked exactly like the MRSA did when she was in the hospital. Dr. MacKoul said she didn't think it was and we were going to put her on a steroid to treat the redness and provide her some relief from the itching. She did say if it got worse, she would be on stand by this weekend for me to call. She said she would let her husband (who was on call this weekend) to tell her if I called and she would meet me at the office to personally look at Regan. That is a great doctor! We had a joking conversation about me just needing to make a standing appointment every month, and Dr. MacKoul mentioned that there were about five patients in her practice who the office staff know are to get immediately seen if they call. We had the dubious honor of being one of them! While I was there, I got to meet the triage nurse, Betsy who I have had many conversations with on the phone, but hadn't gotten to meet. Dr. MacKoul tracked her down when I casually mentioned that one day I wanted to meet her. Betsy and I had a nice little conversation and it was nice to put a face to a voice! It is just a great office. I feel confident in Dr. MacKoul's clinical judgment and she put my mind to ease once she examined Regan.
The concern with Regan's MRSA is that there are only two drugs that it is responsive to. You can't treat it with the regular protocol because it is an unusual strain. MRSA is very common, her strain of MRSA is not. The infectious disease doctors said they had only seen one other case so resistant to all meds. That is why they feel it came from China, because it is such an unusual strain. The only effective drugs must be administered through IV and that means staying in the hospital. The second concern is how it went systemic and began spreading up her body. My constant fear is, if it comes back I don't want it to become resistant to the two drugs it responds to now.
The other great thing about Dr. MacKoul is that she has such great clinical judgment and the steroid gave Regan almost instant relief. She was happy within one hour. After not sleeping for about a week (she must have been getting sick and feeling the beginnings of illness), we slept in that night until 9:30 the next morning!!!!! Sleep has never felt so good! I was a walking zombie all week and so I felt so refreshed! Her arm and leg look no worse and so we feel it isn't MRSA, but just a viral skin thing like Dr. MacKoul said. I am so glad all my fears were unfounded!
Sunday, September 16, 2007
Four Day Weekend
Wednesday, September 12, 2007
More Beach Pictures
Monday, September 10, 2007
Beach Time and Konnor's Tooth Loss

Friday, September 07, 2007
Konnor is the Big 6!!
On Wednesday, I had an appointment with our adoption social worker to complete Regan's second post placement visit. I tried mowing the lawn on Tuesday, but of course my lawnmower broke a belt. I told Jennifer my disclaimer was that I tried, but don't judge me on the grass! I hate yardwork. Despite the yard tribulations, it was nice to catch up with Jennifer. She had a new referral to deliver to a family and she was driving to meet them after our appointment. How exciting! I will never, ever forget the excitement of Regan's referral and I am so happy for everyone experiencing that wonderful emotion! Jennifer and I sat and talked while we completed Regan's paperwork and we did some extra paperwork while Jennifer was here ;)
Thursday was not such a good day. I attended a memorial funeral for a little 5 year old little boy. Please keep Amy, Jimmy, and their family in your prayers as they mourn the loss of their five year old son. As unbelievable as it is, this is the second child that they have lost. I am devastated. I saw him for therapy from the time he was 8 months old until he was almost 4. For over two years, I was at their house 2-3 times per week. Tyler was the most awesome little boy. He would smile at the sound of your voice and even when he was fighting seizures, aspiration fears, and various other medical concerns, he would give the most amazing smile and laugh. It makes you come home and hug your own baby that much tighter.
Wednesday, August 29, 2007
Girly Girl
Thursday, August 23, 2007
Mentally Tired
Tuesday, August 21, 2007
I Spoke Too Soon
Friday, August 17, 2007
A New School Year


Saturday, August 11, 2007
The 5 Second Rule
Monday, August 06, 2007
100 Good Wishes Quilt
Thursday, August 02, 2007
1-2-3 Sign with Me
http://www.freewebs.com/123signwithme/
I'll also have the website listed under my "links" section!
Thursday, July 26, 2007
A Great Couple of Days
The newest member of the Newton family.Saturday, July 21, 2007
No More Doctors for 5 Months!!!!
Tuesday and Wednesday we worked on our paper route. On Wednesday morning, I spent a couple of hours on the phone with various doctors trying to figure out what the results were of Regan's immune system bloodwork. We had completed the final bloodwork a couple of months ago and hadn't heard anything. I figured "no news is good news" and I was never really worried about her bloodwork anyway so I hadn't really pursued calling doctors. I had forgotten that she was scheduled for more immunizations on Wednesday and couldn't have them if her bloodwork came back screwy. Finally, the Infectious Disease doctor, Dr. Gonzalez called me back to personally talk alot of gibberish of which the end result was that she could get all her immunizations. After she told me all about this blood count and that blood count she said that some of her levels were slightly off, but that was probably because it was so soon after her hospitilization and that they were probably residual results of the huge infection. She wants to repeat the bloodwork in two months (I'm thinking no). If it was too soon after her illness and that is what they are saying caused her bloodlevels to be slightly off why did they rush me so fast to get the bloodwork done? We should have waited a month or two.
My other huge fear is having Regan receive the MMR. Working in the school system, there are alot of worries that the MMR is linked to autism. It has not yet been proven, but it is a scary thought. I have talked it over with people and done some research, but depending on where you look depends on what results you find. Dr. Gonzalez told me alot of stuff and about various research articles, but the bottom line was that she gave her son the final MMR yesterday and that is is completely safe.
I got off the phone and still was not comfortable with giving Regan the MMR. I decided I wasn't going to let her receive the MMR until I talked to Dr. M, her pediatrician. Unfortunately, we were only scheduled to see a nurse. I figured Regan could receive her hepatitis and we would reschedule an appointment to talk to Dr. M and decide about the MMR at this later date. When we got to Dr. M's office, we were heading to the back and Dr. M was heading towards us. She had seen that we were on the schedule for today and told me she was stopping by to see if I had any questions about her immunity tests. I told her yes and she came in and sat down to talk. I explained my fears about the MMR and she relieved them. Told me about various research and about Regan being older and her immune system being fine. She said her immune system tests showed nothing to be worried about. That is why I love her being Regan's doctor. She anticipated I would have questions and even though we weren't on her schedule, she came to find us to make any questions I had were answered. We are now done with doctor's visits until January!
On Thursday, Konnor, Regan, and I went to the free movie at Bell Tower Theatres. Regan did pretty good. We met four of our friends from Vacation Bible School. That was fun running into them. We then ate lunch with my mom and headed for another doctor's appointment. She had her follow up audiogram and her ENT doctor visit. Her last audiogram showed increased pressure and fluid in her ears, possibly decreased hearing in her right. Since then, I have seen no concerns, but we were doing a follow up. Regan was being REALLY difficult and we went outside because she started pitching a temper tantrum. I told the receptionist we would be outside and she said she would let them know. Well, she didn't. We sweltered outside for about 30 minutes (after 30 minutes of wait inside) and they finally came and got us. They had forgotten we were outside! Anyway, everything is fine. This test result showed no concerns. The increased fluid resolved itself, her hearing is normal, and we have no more appointments with the ENT. In the meantime, Regan was acting up more than she has in a long time and we headed home.
Friday, we took Marmaduke back to the vets. He opened his incision and needed a distemper and parvo booster shot. He did well and loved on everyone and we just have to clean out his incision. In the meantime, I am so thankful I have tile as he has bled drops of blood everywhere! So nice!
In the afternoon, we headed to the social security office where I FINALLY applied for Regan's social security card! The waiting room was packed and I was so worried we were going to be there forever, but 30 minutes later we were in and out! I hope everything is correct, because I found several errors on the printout the lady had made to submit to the social security administration. Hopefully, they were all caught!
Sunday, July 15, 2007
My Big Boy
Yep, my new man is a dog. A BIG dog! This all started with my mom! My mom has been ready to get a new dog and so we started looking at the adoption areas at PetCo and PetSmart. I also found the best websites; http://www.petfinder.com/ and 1-800-save-a-pet.com. These websites list rescue groups, pet shelters, humane societies, etc. I'm not into buying a dog from a breeder or pet store and all my animals have either been given to me or are strays. It was really hard when I worked at the vet's office saying "no" to taking home all of the strays that would come in. Anyway, when researching rescue groups for my mom I found a few Great Dane rescue groups. I applied to one group and got approved and was supposed to go out there yesterday to look at their dogs. In the meantime, I kept checking the websites and 6 Great Dane Mix puppies were listed at the Collier County Humane Society. This was on Sunday. My mom had Monday off and so we made plans to go on Monday and be there when they opened. I hate animal shelters and I was nervous about going......I hate to think of all the animals that don't find homes.
Monday morning we got to the shelter and we headed towards the dog kennels. I walked in and immediately saw the hugest dog. He was an adult Great Dane. I looked at his information and he is listed as being 6 years old. That is very old for a Great Dane and so I went down to look at the puppies. They were very cute. Another lady was there looking at them and ended up taking two of them home. I just didn't click with the puppies. There were actually two adult Great Danes. The other Dane was listed as being 4 years old. He was very aloof and didn't want anything to do with me. I went back and looked at the 6 year old Great Dane. He had been picked up as a stray. He was soooooo skinny. He was just the biggest dork. He kept licking my fingers and wagging his tail and just generally being a doofus. I asked the kennel worker if I could take him in the visiting pen. As soon as we got in the visiting pen I knew he was going to be mine. He was this big, lumbering doof ball with the sweetest personality. He about knocked me over as he loves to lean into you. He loved Yunnie and kept trying to smell her pants. Lovely! All my reservations about his age went out the window and I couldn't not take him home. I know my heart will be broken when I don't have as much time with him as I would like, but I couldn't leave him at a kill shelter when he was so obviously a loving, sweet dog.
The adoption fee was fifty dollars and included shots, microchipping, and neutering. I thought that was dirt cheap! You also get a collar, a bag, dog food, etc in a goody bag. I had to leave him there so he could be neutered the next day and I felt bad taking him back to the kennel. Yesterday, I checked on the puppies and they were all adopted. I figured since they were puppies they wouldn't be there long and I was right.
On Tuesday, the shelter had to send him to an outside vet to be neutered. They couldn't accomodate a dog of his size. He actually ended staying at the vet until Wednesday as they didn't get him neutered on schedule. My brother's girlfriend, Jean, picked him up for me since she works in Naples and I was in the middle of Vacation Bible School at the time he was ready.
Friday, we took an emergency trip to the my vets because he kept bleeding at his surgery site. Luckily, the bleeding stopped and it all looks good. I can't fully explain what a nice dog he is. He is already so attached to me. I'm surprised after just a few short days. He cries if he can't be near me. My mom has taken him for two walks around the block for me and he keeps turning around and crying to come back to see me. He also tries to sit on my lap. I like to breathe, so that doesn't work out so well for me! Daisy is a little jealous so I have some making up to do to her! He is so well trained he obviously belonged to someone. He is completely housebroken (thank goodness, he has the bladder of a pony!). I don't think about food on the counters having only had small dogs and he hasn't touched it. He does need to learn basic manners and being so big, I am going to take him to obedience class. The pictures don't do it justice, but with his head up, he stands taller than Konnor. He weighs 114.6 pounds and he is extremely underweight. His name at the shelter was AO78262. I didn't think that was very fitting;) Jean came up with the name Marmaduke and that he is! He is the biggest, most loveable, big baby!
